I’ve been in conversation with a few parents of young kids who seem to live on the spectrum lately. This blog post pretty well sums up those conversations.
My hubby asked the question “what’s the next blog topic Kaz?”
I told him I was thinking about something relating to the diagnostic process. The response from him was to draw in a big breath and say “wow-that’s MASSIVE! You may need to make that blog two parts.”
I started to think there really was two parts for me. The first was the external mechanics of stepping into the ‘system’. There was diagnostic criteria to be met, forms to be filled in, questions to be answered; professional’s to be talked to.
Then there was the internal and personal part. Guilt, grief, denial, confusion, anger, relief, exhaustion and heart gripping fear. Often the two parts overlapped. Interfacing with the ‘system’ to get a diagnosis was as equally challenging to navigate as the emotional minefield.
After months spent watching my son closely and waiting for something to reassure me once and for…
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